A higher-dose regimen of nusinersen may provide further benefits to people with SMA relative to the approved regimen, its ...

Guest writer Robin Collins, who's approaching 70, has adjusted to losses and survivor's guilt while finding solace in ...

A new ASAH1 mutation linked to SMA with progressive myoclonic epilepsy was found in a young boy, offering insights for ...

A group of questionnaires called PROfuture can meaningfully measure a variety of symptoms of SMA that impact patients, a ...

Columnist Helen Baldwin says she's come to appreciate the people she's met in the community years after her son's SMA ...

Columnist Connie Chandler shares how traveling with SMA isn't a solo journey, but an opportunity to deepen bonds with people ...

Guest writer Joanna Buoniconti says that new treatments have granted her many things she's grateful for, including the ...

Robin Collins is a self-described “little old lady.” She’s 4 feet tall in her wheelchair and unexpectedly hurtling toward age ...

Columnist Sherry Toh discovers that an app's guys can treat her like any other woman — which makes for a lot of potential bad ...

For columnist Connie Chandler, finding a community filled with love, admiration, and support has made all the difference in ...

Joanna Buoniconti is a writer and editor based in western Massachusetts. She was diagnosed with SMA type 2 in 2000 at 10 ...

After a weekend with her SMA community, columnist Brianna Albers faces a difficult truth: Some things are hers to achieve, and some are not.