The syndrome is sometimes also called VATER association or VACTERL association. In this case, the C stands for cardiac, or heart, irregularities , and the L stands for limb differences .

Only about one in 10,000 to 40,000 children a year are born with VACTERL according to the Children's Hospital of Philadelphia. So with that, my husband and I leaned even harder into what we slowly ...

VACTERL Syndrome | Lily's Story Play. Genetics. There is significant evidence that a proportion of VACTERL has a genetic foundation, although the evidence that all or even most affected patients ...

JT Mestdagh, diagnosed with VATER syndrome (VACTERL association), is the author of "No Bad Days," written for young adults aged 13-19 to inspire them to overcome unexpected adversity in life.

Vacterl syndrome impacts several parts of his body and as a result, has already undergone multiple surgeries. Due to the complexity of his medical conditions, he will require more procedures in ...

My son was born with four major congenital malformations and a condition I have never heard of. VACTERL association is so rare that I have only met one other child who has it. He is now 5 years old ...

The event helped raise money to help Tom and Jackie Moran -- who have served as volunteer firefighters for a combined 40-plus years -- in their medical bills and other support as their 10-month ...

Philanthropist and author JT Mestdagh shares his story in "No Bad Days: Turning Your Biggest Challenges into Your Greatest Opportunities" (Adapted for Young Readers). He has triumphed over countless ...

LITTLE ROCK, Ark. — Life has never been easy for Rachel Riles, who was born with VACTERL syndrome, a disorder that affects several areas of the body. She needs a kidney transplant. "I just have ...

An eight-year-old Camille, who suffers from Vacterl syndrome, pedaled 90-km to Paris to meet her star French professional footballer Kylian Mbappé. The girl arrived at the Parc des Princes, a football ...