Guest writer Robin Collins, who's approaching 70, has adjusted to losses and survivor's guilt while finding solace in ...

A new ASAH1 mutation linked to SMA with progressive myoclonic epilepsy was found in a young boy, offering insights for ...

Columnist Helen Baldwin says she's come to appreciate the people she's met in the community years after her son's SMA ...

Robin Collins is a self-described “little old lady.” She’s 4 feet tall in her wheelchair and unexpectedly hurtling toward age ...

Columnist Connie Chandler shares how traveling with SMA isn't a solo journey, but an opportunity to deepen bonds with people ...

A group of questionnaires called PROfuture can meaningfully measure a variety of symptoms of SMA that impact patients, a ...

Guest writer Joanna Buoniconti says that new treatments have granted her many things she's grateful for, including the ...

For columnist Connie Chandler, finding a community filled with love, admiration, and support has made all the difference in ...

Columnist Sherry Toh discovers that an app's guys can treat her like any other woman — which makes for a lot of potential bad ...

Joanna Buoniconti is a writer and editor based in western Massachusetts. She was diagnosed with SMA type 2 in 2000 at 10 ...

Evrysdi treatment is safe and effective at improving or stabilizing motor and lung function in adults with SMA for up to 2 ...

After a weekend with her SMA community, columnist Brianna Albers faces a difficult truth: Some things are hers to achieve, and some are not.